Chasity’s Story

Gary lives in Matanuska-Susitna Valley in Alaska. “I am privileged to live in one of the most beautiful spots on Earth,” he says. “But I am also privileged to have a beautiful person in my life – my niece, Chasity.” Chasity was born with Spina Bifida and currently lives in North Carolina. She’s 31 and…

Cindy Katzoff

On Friday, May 4, 2012, Cindy’s youngest daughter and son-in-law received the news that a final ultrasound, performed the day before her daughter was due, indicated that their baby, previously thought to be completely healthy, would be born with a potentially life-threatening disorder called Spina Bifida. “It was devastating news, and we all tried to…

George

George was born with Spina Bifida on April 10, 1946 in McKeesport, PA. He was the first of four children. From a very young age, it was clear that George was a compassionate friend to all. He was full of joy, and wide smiles were normal occurrences. Having faced many challenges with a positive attitude…

Will and Katie Dickey

Will and Katie are newlyweds—married about four months ago. While they met online, as things turned out their paths could have easily crossed: She is the admissions counselor at the college he was attending, and she grew up knowing some of his cousins. A Balancing Act I’m very big on schedules and regimen. Before I…

Harper Adams

Harper was born on July 14, 2008. She’s had 10 surgeries, sees six specialists, wears braces on her legs, has bowel and bladder incontinence, and receives physical and occupational therapy. But she’s also a typical 5-year-old who calls herself “Princess Harper,” has a princess castle and Disney princesses in her bedroom, attended preschool at Cassidy…

Logan Dempsey

In July 2012, Jillian and Nathan went to their 19 week ultrasound and found out they were going to have a baby boy. “I secretly, desperately, wanted a baby boy,” said Jillian. “Looking back, I realize the sonographer didn’t say very much, but I was so excited that I didn’t care.” Upon following up with…

Liam’s Story

On July 20, 2009, at 21.5 weeks pregnant, Brigid and DeMarko found themselves sitting in a maternal-fetal specialist’s office, listening to a doctor say these words: “we’ve found some deformities.” They were devastated. But deep down inside, they knew that their child was no less valuable, no less worthy, simply because his legs might not…

Aubrey’s Story

Aubrey, 4, has Spina Bifida. Instead of looking up at her mom, Laura, she recently told someone asking about her condition, “My legs don’t work like yours. I was born this way.” That moment was one of many proud moments for Laura. Like the first time Aubrey was able to climb the stairs all by…

Tyler

We first learned that Tyler had Spina Bifida at my 18 week ultrasound. We didn’t know anything about it, so we made the mistake of reading everything on the Internet. Tyler was our firstborn, so we didn’t know that much about parenting ANY child, let alone a special needs one! But we decided early on…

Carol Gulino

Carol is a vocational rehabilitation counselor whose job is twofold: to help people with a variety of disabilities go to work for the first time or to return to work. The last five years of her life have been a bit of a roller coaster due to medical issues— from the doctor who told her…

Kim Burdick and Alicia Herring

On the surface, one might think that 37-year-old Kim Burdick and Alicia Herring don’t have all that much in common. Kim lives in an Indiana town that “may have more cows than people,” she says, while Alicia—15 years her senior—lives across the country in a bustling city of nearly 203,000. Yet, their friendship has continued…

Cheryl Brose

Meet Cheryl Brose Cheryl has worked as a Health Unit Coordinator for 23 years, but has always made time for recreation with her husband Charlie and two dogs. Over the years Cheryl has been active in hand cycling, bowling, basketball, softball, and floor hockey, and has participated in several marathons. Changing It Up I like…

Maaike in America

Hello there. I am Maaike Kersten and I am 16 years old. I have Spina Bifida and use a wheelchair. However, that is not what I am going to talk about. I would like to tell you about my vacation in the United States, which can be done without a problem. My adventure started on…

Tyler Hayman

When Tyler Hayman was born in 1993, he was diagnosed with Myelomeningocele, leaving his mom confused and overwhelmed. Just like many parents, she had concerns and anxieties about the challenges he might face. Little did she know at the time that she brought a hero and an inspiration into this world who would set a…