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Donate
Learn
Get Involved
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Advocate
Lower the Risk
- Folic Acid FAQs
- Got a Minute?
Find Support
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Spina Bifida Association

2 days ago

Did you know that when you fundraise for a #WalkNRollforSB event, you can win prizes? After you create your team and raise $50, you'll win this NEW car decal! Register for a walk near you today: www.walknrollforsb.org ... See MoreSee Less

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6 days ago

Tomorrow is the LAST day to register for SBA's first advocacy event, Teal on the Hill. Together, we can make our voices heard, advocating to help ensure everyone with Spina Bifida has access to high quality, affordable health care. *This event is open to the entire Spina Bifida community* Register today! www.sbtealonthehill.org

Spina Bifida Association
Only 12 days left to get a discounted hotel rate for Teal on the Hill. Register by April 15th so we can schedule meetings with your Members of Congress. Wondering what to expect and why Teal on the Hill is important? Check out what Will Dickey & Megan Sorensen have to say! Register today at www.sbtealonthehill.org ... See MoreSee Less

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Spina Bifida Association

1 week ago

"Our elected officials in Congress cannot prioritize or fight for the lives they cannot see and so we will shine our light on Owen, those who have come before him and those whose stories have not yet begun to bring visibility and urgency to the legislative issues impacting their lives." - Owen's parents, Sadie Dobrozsi, MD MS & John Cox, MD http://ow.ly/pSXU30jsHfi ... See MoreSee Less

Parenting as Pediatricians: The Story of our Son, Owen Cox, and the Fight for his Health Care.

sbinsights.org

Our son Owen is 21 months old. He loves the ABCs, string cheese, and his older brother. Owen was born with myelomenigocele at the L5-S1 level. In his short life, he has had 5 neurosurgeries, 4 emer…

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Spina Bifida Association

1 week ago

We love seeing how creative people get with their #WalkNRoll for #SpinaBifida team names! We even have a prize for best team name. What's YOUR team name, and why? www.walknrollforsb.org ... See MoreSee Less

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Spina Bifida Association

2 weeks ago

Join Stacy & Ryen for Teal on the Hill! Only 5 more days to register and receive the discounted hotel rate! Learn more and register today at www.sbtealonthehill.org

"I feel it is very important for my son Ryen and I to attend Teal on the Hill. Ryen is one of the many faces of Spina Bifida and I believe our lawmakers need to see who they are representing and affecting first hand. I am a very passionate advocate for my son and all of the Spina Bifida community. I think it is extremely important for Ryen to develop a good understanding of the issues that will affect his life and I hope to help him to become a strong self advocate as well. Teaching Ryen early about these issues is important because our children are our future. We need to educate, empower, and encourage them to be powerful leaders and impactful members of society. Attending this event will also help me to educate myself more and allow me to further my efforts personally and corporately in the community. I want to bring awareness, education, inclusion, and change to the community and world in an effort to better the lives of those affected by Spina Bifida. This trip will allow Ryen and I to fight for his right for high quality, affordable health care, as well as the rights of health care for others in the Spina Bifida community. We need to educate our lawmakers on the issues that affect the lives of those living and affected by Spina Bifida. I want them to look my son in the face and know who they are affecting when they make their laws. I pray everyone that attends will impact our lawmakers and be the faces of Spina Bifida that bring education, strength, hope, and change in order to protect and preserve all the precious lives of those with Spina Bifida." - Stacy DeFillipo ... See MoreSee Less

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