Advocate
Federal and State Governments play a vital role in Spina Bifida research, health care, and the ability of people with Spina Bifida to have access to affordable care and treatment. We are a powerful voice advocating on behalf of the Spina Bifida community. We visit over 50 offices on Capitol Hill each year advocating for on behalf of the entire Spina Bifida community and affiliated organizations. Our goal is to help educate Members of Congress about the needs of all those affected by Spina Bifida so they make informed, smart decisions around legislation affecting Spina Bifida research and access to treatment and care.
Our Advocacy Priorities
We are the only voice of the Spina Bifida community—advocating for programs, agencies and policies that help advance research, improve access to specialized, quality care of people with Spina Bifida and raise awareness about the birth defect.
Teal on the Hill
The only advocacy day specifically for the Spina Bifida community and the organizations and companies that represent them.
Teal on the Hill draws people from across the country to meet with their Representatives and Senators, share their stories, make the case for more accessible care, especially for adults, and ask for increased research funding.
Take Action
Become a Spina Bifida Advocate
Your voice is power if you use it. You have the power to change policy for people with Spina Bifida. Join us by becoming an SB Advocate.