It’s not uncommon to be diagnosed with Spina Bifida Occulta (SBO) as an adult. While this is considered a mild form of Spina Bifida, many people who have SBO struggle with debilitating pain and feel frustration over the lack of information, resources, and awareness. The Spina Bifida Association offered a Community Information Session on the topic of Spina Bifida Occulta. The presentation was moderated by Brad Dicianno, MD who was joined by Robin Bowman, MD and Christopher Standaert, MD.
Robin Bowman, MD
Director, Spina Bifida Center, Co-Director, Fetal Neurosurgery
Ann & Robert H. Lurie Children’s Hospital of Chicago
Associate Professor, Department of Neurosurgery
Northwestern University, Feinberg School of Medicine
Christopher Standaert, MD
Visiting Associate Professor, Vice Chair for Ambulatory Services
Department of Physical Medicine and Rehabilitation
University of Pittsburgh School of Medicine
Brad Dicianno, MD
Professor, Endowed Research Chair, Assistant Dean for Medical Student Research
Department of Physical Medicine and Rehabilitation
University of Pittsburgh School of Medicine
Director, UPMC Adult Spina Bifida Clinic
Medical Director, UPMC Center for Assistive Technology
Associate Medical Director, Spina Bifida Association
To view a recording of the presentation, please click here. And for additional information please select from the following:
Community Information Session November 2022: SBO Question-and-Answer
Spina Bifida Association Information Sheets:
- What is Spina Bifida Occulta?
- Spinal Cord Tethering
- Folic Acid: Supplementation before conception reduces the risk of Spina Bifida
SBA National Resource Center
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SBA Website: www.spinabifidaassociation.org