Help Needed: Please Share Your Experiences

We know that the majority of those with Spina Bifida are at risk for bowel incontinence. We also know that there are barriers to accessing medical equipment and supplies, including those needed for bowel management. The Spina Bifida Association is working to eliminate these barriers and provide greater access to needed supplies.

The Spina Bifida Association and United Spinal Association’s Access & Care Coalition’s are conducting a survey on behalf of people with neurogenic bowel dysfunction (NBD), as well as people with bowel incontinence or constipation. The data collected from this survey will be used to encourage Medicare and other health plans to provide coverage for bowel management equipment and supplies.

If you are an adult with neurogenic bowel and/or bowel incontinence or a parent of a child with neurogenic bowel and/or bowel incontinence, please take a moment to complete a survey and share your experiences. The survey takes about 10 minutes.

This survey is voluntary and only includes people who choose to take part. No personally identifying information will be captured. The information you provide will be kept confidential. There are no risks or benefits to this survey. There is no cost to participate, and you will not receive any payment for participation.

Please click here to take the survey>>.

Your experiences are very important. Please help us by taking the survey.

Watch for updates on the survey results on the Spina Bifida Association’s Facebook pages and Instagram feeds.

Notes: The survey is being administered by Duke University’s Medical Center’s Institutional Review Board (IRB). All responses are confidential. The survey is being conducted through the Spina Bifida Association and United Spinal Association’s Access & Care Coalition.