The Spina Bifida Association is proud to offer the comprehensive booklet, Understanding a Spina Bifida Diagnosis. The booklet is written in English and Spanish and is intended for expectant parents and caregivers immediately after they have received a prenatal diagnosis indicating high chances that their child has Spina Bifida. This user-friendly online booklet covers essential topics, including:

Understanding Spina Bifida

• Clear explanations of what Spina Bifida is, its types, and how it affects individuals.
• Insights into the physical, emotional, and social aspects of living with Spina Bifida.

Diagnosis and Treatment

• Guidance on prenatal diagnosis, available tests, and early interventions.
• Information about surgical options and ongoing care.

Support and Advocacy:

• Resources for connecting with support groups, advocacy organizations, and healthcare professionals.
• Tips for building a strong support network.

Medical providers and expectant parents can view the booklet online at understandingspinabifida.org and request a free copy by completing an online request form.

Understanding a Spina Bifida Diagnosis is the result of a collaboration between the Spina Bifida Association and Lettercase, part of the National Center for Prenatal and Postnatal Resources.  The Center offers resources and support for medical providers and expectant parents first learning about this diagnosis, prenatally or postnatally.

Thanks to a generous grant from the Joseph P. Kennedy, Jr. Foundation, up to five books may be purchased  only for the cost of USPS Priority shipping and handling ($12).