Clinics

Spina Bifida Clinics

This listing represents the most up-to-date information we have gathered about clinics in the United States that serve people with Spina Bifida.

As you search for a clinic, please keep in mind that:

  1. This information is subject to change while we continue to update the list. Do you know a clinic or individual provider that should be featured here? Let us know! Please send a message to Judy Thibadeau, Director of Research and Services, at [email protected].
  2. Some services for adults are housed within children’s clinics. Please call the numbers we’ve provided and request their staff to point you in the right direction.
  3. Each clinic has its own unique structure and process of providing care. Please call the numbers shown and tell their staff what you need. They will direct you to the appropriate department or contact.
  4. The clinics are listed alphabetically by city.

*Clinics with an asterisk are Clinic Care Partners.

States A-F

ALABAMA

*UAB Adult Spina Bifida Clinic

1717 6th Avenue S.

Birmingham, AL  35233

205-934-4131

Ages served: Adults

Children’s of Alabama Spina Bifida Program
1600 7th Avenue South
Birmingham, AL  35233
205-638-5281
Ages served: Children

ARIZONA

*DISTRICT MEDICAL GROUP CHILDREN’S REHABILITATIVE SERVICES
3141 N. 3rd Avenue
Phoenix, AZ  85013
602-914-1520
Ages served: Children and adults

*Phoenix Children’s 
1919 E. Thomas
Phoenix, AZ  85016
602-933-KIDS (5437)
Ages served: Children

Children’s Clinic Rehabilitation Services (CCRS)
2600 N Wyatt Drive
Tucson, AZ  85712
520-324-5437
Ages served: Children

ARKANSAS

* ARKANSAS CHILDREN’S HOSPITAL 
Spinal Cord Disorders Clinic
1 Children’s Way
Little Rock, AR 72202
501-364-1806
Ages served: Children

CALIFORNIA

*CHILDREN’S HOSPITAL OF LOS ANGELES

4650 Sunset Boulevard

Los Angeles, CA  90027

323-361-2384

Ages served: Children

*Stanford Children’s Health Specialty Services

725 Welch Rd

Palo Alto, CA 94304

408-426-5625

Ages served: Children

Rady Children’s Hospital Spinal Defects Clinic

3020 Children’s Way

San Diego, CA  92123

858-966-8896

Ages served: Children

*LOMA LINDA UNIVERSITY CHILDREN’S HOSPITAL PEDIATRIC SPECIALTY CLINICS

2195 Club Center Drive #G

San Bernardino, CA  92408

909-835-1816

Ages served: Children

*SHRINERS HOSPITAL FOR CHILDREN – SACRAMENTO

2425 Stockton Boulevard

Sacramento, CA  95817

916-453-2000

Ages served: Children

SHRINERS FOR CHILDREN MEDICAL CENTER – PASADENA

909 South Fair Oaks Avenue

Pasadena, CA  91105

626-389-9300

Ages served: Children

*UCSF Benioff Children’s Hospital
1825 Fourth Street
Fifth Floor
San Francisco, CA 94158
(415) 476-3899
Ages served: Children

*Regional Spina Bifida Program, Kaiser Oakland Medical Center

280 W. MacArthur Boulevard

Oakland, CA  94611

510-752-6920

Ages served: Children and adults

Valley Children’s Healthcare

9300 Valley Children’s Place

Madera, CA  93636

559-353-6215

Ages served: Children

Search “Spina Bifida” and select the desired specialty

ORTHOPEDIC INSTITUTE FOR CHILDREN
403 West Adams Boulevard
Los Angeles, CA  90007
213-741-8352
Ages served: Children

MILLER CHILDREN’S AND WOMEN’S HOSPITAL SPINA BIFIDA CCS CENTER
2801 Atlantic Avenue
Long Beach, CA  90806
562-933-8832
Ages served: Children

LOMA LINDA OUTPATIENT REHABILITATION CENTER
11406 Loma Linda Dr. 
Suite 300
Loma Linda, CA  92354
909-558-6272
Ages served: Adults

Children’s Hospital of Orange County Spina Bifida Clinic

1201 West LaVeta Avenue

Orange, CA  92868

714-509-8514

Ages served: Children

COLORADO

*Children’s Hospital Colorado, Pediatric Rehabilitation Department

13123 E 16th Avenue

Aurora, CO  80230

720-777-2806

Ages served: Children

CONNECTICUT

*Connecticut Children’s Hospital

282 Washington Street

Hartford, CT  06106

860-545-9000

Ages served: Children

Yale New Haven Health, Pediatric Specialty Clinic

1Long Wharf Drive

New Haven, CT  06511

203-785-4081

Ages served: Children

DELAWARE

Nemours/Alfred I. duPont Hospital for Children

1600 Rockland Rd.

Wilmington, DE  19803

302-651-4200

Ages served: Children

DISTRICT OF COLUMBIA

Children’s National Health System, Spina Bifida Program

111 Michigan Avenue, NW

Washington, DC  20010

202-476-3094

Ages served: Children

FLORIDA

UF Health Pediatric Neurosurgery

836 Prudential Drive, Suite 1205

Jacksonville, FL  32207

904-633-0780

Ages served: Children and adults

Holtz Children’s Hospital UM / Jackson Memorial Medical Center 

1611 NW 12th Avenue, East Tower

Miami, FL  32827

407-650-7715

Ages served: Children

Nemours Children’s Health System

13535 Nemours Parkway

Orlando, FL  32827

407-650-7715

Ages served: Children

*Orlando Health / Arnold Palmer Pediatric Specialty Practice

1725 Cook Avenue

Orlando, FL  32806

321-841-5683

Ages served: Children, will refer adults

JOHNS HOPKINS ALL CHILDREN’S HOSPITAL
Institute for Brain Protection Sciences
600 5th St. South, 4th Floor
St. Petersburg, FL 33701
727-767-4881
Ages served: Children

States G-K

GEORGIA

CHILDREN’S HEALTHCARE OF ATLANTA – MULTISPECIALTY CLINICS

1400 Tullie Road NE

Atlanta, GA 30329

404-785-KIDS (5437)

Ages served: Children

 

IDAHO

St. Luke’s Children’s Spina Bifida Clinic

100 East Idaho Street, Suite 200

Boise, ID  83712

208-381-7122

Ages served: Children

ILLINOIS

*Ann & Robert H. Lurie Children’s Hospital of Chicago

225 E Chicago Avenue

Chicago, IL  60611

1-800-543-7362 

Ages served: Children

Northwestern Medicine

Transitional Adult Congenital Genitourinary (TRAC) Clinic

251 E Huron St.

Chicago, IL 60611

312-926-2000

Ages served: Adults

Shriners Hospital for Children – Chicago

2211 North Oak Park Avenue

Oak Park, IL  60707

773-622-5400

Ages served: Children

Advocate Lutheran General Hospital / Advocate Children’s Hospital

1775 Dempster Street

Park Ridge, IL  60068

847-723-2210

Ages served: Children

OSF Healthcare / Children’s Hospital of Illinois Spina Bifida Clinic

530 NE Glen Oak Lane

Peoria, IL  61603

309-624-4064

Ages served: Children

INDIANA

*Riley Hospital for Children at Indiana University Health

705 Riley Hospital Drive

Indianapolis, IN  46202

317-944-4846

Ages served: Children

Riley Hospital Adult Spina Bifida Clinic

705 Riley Hospital Drive

Indianapolis, IN  46202

317-944-7458

Ages served: Adults

KENTUCKY

Norton Children’s Hospital

231 E. Chestnut Street

Louisville, KY  40202

502-637-7363*

*SBA of Kentucky will direct you to the appropriate contact.

Ages served: Children

States L-P

LOUISIANA

*Children’s Hospital New Orleans

Monthly Spina Bifida Clinic

200 Henry Clay Avenue

New Orleans, LA 70118

504-896-2888

Ages served: Children

Ochsner Health System Primary Care Pediatrics

1514 Jefferson Highway

Jefferson, LA  70121

504-842-7538

Ages served: Children

MAINE

Maine Medical Partners Pediatric Neurology

49 Spring Street #2

Scarborough, ME  04074

207-396-7337

Ages served: Children

MARYLAND

*Kennedy Krieger Institute

Philip A. Keelty Center for Spina Bifida and Related Conditions

801 North Broadway

Baltimore, MD  21205

443-923-9130

Ages served: Children and adults

MASSACHUSETTS

* Boston Children’s Hospital

300 Longwood Avenue

Boston, MA  02115

617-355-8532

Ages served: Children

MASSGENERAL FOR CHILDREN

55 Fruit Street, 11th Floor
Boston, MA  02114
617-726-7552
Ages served: Children and adults

MICHIGAN

Michigan Medicine Physical Medicine & Rehabilitation

1500 E Medical Center Drive

Ann Arbor, MI  48109

734-936-7175

Ages served: Adults

Children’s Hospital of Michigan Specialty Center

3901 Beaubien Boulevard

Detroit, MI  48201

313-745-5437

Ages served: Children

Sparrow Hospital – Sparrow Professional Building

1200 E. Michigan Avenue, Suite 460

Lansing, MI  48912

517-364-1000

Ages served: Children

MINNESOTA

CHILDREN’S HOSPITALS AND CLINICS OF MINNESOTA
Spina Bifida Clinic
2530 Chicago Ave S, Suite 267
Minneapolis, MN  55404
651-220-5230
Ages served: Children

*Gillette Children’s

Spina Bifida Clinic – Pediatric

200 University Avenue East

St. Paul MN 55101

651-290-8707

Ages served: Children

 

Spina Bifida Clinic – Adults

435 Phalen Boulevard

St Paul, MN 55130

651-290-8707

Ages served: Adults

Shriners Children’s – Twin Cities

215 Radio Drive Suite 100

Woodbury, MN 55125

612-596-6100

Ages served: Children

Mayo Clinic

200 First Street, SW

Mayo Building, 16th Floor

Rochester, MN  55905

855-629-6543 (MAYOKID)

Ages served: Children

MISSISSIPPI

*CHILDREN’S OF MISSISSIPPI – UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
Children’s Neurosurgery
2500 North State Street
Jackson, MS 39216
601-984-5700 (Option 2) or 601-815-4130
Ages served: Children

MISSOURI

*Children’s Mercy Hospital & Clinics, Spinal Differences Clinic

2401 Gillham Road

Kansas City, MO  64108

816-234-3970

Ages served: Children

SSM Health Cardinal Glennon Children’s Hospital

1465 S. Grand Boulevard

St. Louis, MO  63104

314-577-5600

Ages served: Children

St. Louis Children’s Hospital
1 Children’s Place
St. Louis, MO  63110
800-678-5437
Ages served: Children

MONTANA

Montana Children’s

310 Sunnyview Lane

Kalispell, MT 59901

(406) 890-7500

Ages served: Children

NEBRASKA

Children’s Hospital & Medical Center’s Children’s Developmental Clinic (CDC)

8200 Dodge Street

Omaha, NE  68114-4113

402-955-4160

Ages served: Children

NEW HAMPSHIRE

Children’s Hospital at Dartmouth-Hitchcock

1 Medical Center Drive

Lebanon, NH  03756

603-653-9883

Ages served: Children

NEW MEXICO

Carrie Tingley Hospital

Pediatric Orthopedics

127 University Boulevard NE

Albuquerque, NM  87102

505-272-5286

Ages served: Children

NEW YORK

UPSTATE GOLISANO ADULT SPINA BIFIDA CLINIC, UPSTATE UNIVERSITY HOSPITAL
Physical Medicine and Rehabilitation Outpatient Clinic
175 Elizabeth Blackwell Street
Syracuse, NY 13210
315-464-4014
Ages served: Adults

Montefiore Department of Physical Medicine and Rehabilitation

111 E 210th Street

Bronx, NY  10467

844-438-3862

Ages served: Children and adults

NYU Langone Initiative for Women with Disabilities

530 First Avenue, 12th Floor

New York, NY  10016

212-598-6429

Ages served: Adults

University of Rochester Medical Center / Golisano Children’s Hospital

150 Crittenden Blvd.

Rochester, NY  14642

585-275-2986

Ages served: Children

Upstate Golisano Children’s Hospital

One Children’s Circle

Syracuse, NY  13210

315-464-6395

Ages served: Children

ALBANY MEDICAL CENTER – ADULT SPINA BIFIDA CLINIC

47 New Scotland Avenue

Albany, NY 12208

518-262-5088

Ages served: Adults

ALBANY MEDICAL CENTER – PEDIATRIC SPINA BIFIDA CLINIC

391 Myrtle Ave., Suite 3B

Albany, NY 12208

518-262-5401

Ages served: Children

NORTH CAROLINA

Levine Children’s Specialty Center

Medical Center Plaza

1001 Blythe Boulevard, Suite 200

Charlotte, NC  28203

704-381-8840

Ages served: Children

UNC Department of Physical Medicine and Rehabilitation

1807 N. Fordham Boulevard

Chapel Hill, NC  27514

984-974-9747

Ages served: Children

*Duke University Hospital/Lenox Baker Children’s Hospital

3000 Erwin Road

Durham, NC  27705

919-681-5456

Ages served: Children and adults

NORTH DAKOTA

Sanford Health Care

237 Broadway N

Fargo, ND  58102

701-234-6600

Ages served: Children

OHIO

*Nationwide Children’s Hospital

700 Children’s Drive

Columbus, OH  43205

614-722-5725

Ages served: Children

AKRON CHILDREN’S HOSPITAL MYELO CLINIC
NeuroDevelopmental Science Center
Considine Professional Building
215 West Bowery Street
Level 4
Akron, Ohio 44308
330-543-2778
Ages served: Children

* Cincinnati Children’s Hospital Medical Center

3430 Burnet Ave.

Cincinnati, OH 45229

513-636-8059

Ages served: Children

Cleveland Clinic Pediatrics

9500 Euclid Avenue

Cleveland, OH  44195

216-444-4899

Ages served: Children

Cleveland Clinic Adult Spina Bifida Clinic

9500 Euclid Avenue, Q10

Cleveland, OH  44195

216-444-2146

Ages served: Adults

Mercy St. Vincent Medical Center Pediatric Specialty Clinic

2213 Cherry Street

Toledo, OH  43608

419-251-3232

Ages served: Children

Dayton Children’s Hospital Myelomeningocele Clinic

3333 West Tech Boulevard

Miamisburg, OH  45342

937-641-5487

Ages served: Children

UH Rainbow Babies & Children’s Hospital

11100 Euclid Avenue RBC 2311

Cleveland, OH  44024

216-844-8438

Ages served: Children

OKLAHOMA

*OKLAHOMA UNIVERSITY CHILDREN’S – PEDIATRIC UROLOGY

1200 N. Children’s Ave., Suite 7D

Oklahoma City, OK 73104

405-271-3800

Ages served: Children

 

OKLAHOMA UNIVERSITY – ADULT SPINA BIFIDA PROGRAM
1200 N. Children’s Ave., Suite 7D
Oklahoma City, OK 73104
405-271-3800

OREGON

SHRINERS HOSPITAL FOR CHILDREN – PORTLAND

3101 SW Sam Jackson Park Road

Portland, OR  97239

503-241-5090

Ages served: Children

*Doernbecher Children’s Hospital at Oregon Health and Science University

700 S.W. Campus Drive

Portland, OR  97239

503-346-0640

Ages served: Children

PENNSYLVANIA

*PENN STATE HEALTH SPINA BIFIDA PROGRAM

Penn State Children’s Hospital

Spina Bifida Clinic

30 Hope Drive, Suite 2200 (Second floor)

Hershey, PA  17033

717-531-7311

Ages served: Children and adults

*Children’s Hospital of Philadelphia (CHOP)

Buerger Center for Advanced Pediatric Care

3500 Civic Center Boulevard

Philadelphia, PA  19104

215-590-1760

Ages served: Children

*University of Pittsburgh Medical Center / Adult Spina Bifida Clinic

UPMC Mercy Pavilion

1622 Locust Street, 4th Floor Physical Medicine and Rehabilitation Clinic

Pittsburgh, PA  15219

412-232-8902

Ages served: Adults

*UPMC Children’s Hospital of Pittsburgh / Spina Bifida Program

4401 Penn Avenue, Floor 2

Pittsburgh, PA  15224

412-692-5096

Ages served: Children

Shriners Hospital for Children – Erie

1645 West 8th Street

Erie, PA  16505

814-875-8700

Ages served: Children

MOSSREHAB EASTERN REGIONAL CENTER FOR ADULTS WITH SPINA BIFIDA

60 Township Line Road

Elkins Park, PA  19027

215-663-6677

Ages served: Adults

States R-U

SOUTH CAROLINA

Medical University of South Carolina Pediatric Spina Bifida Team

Rutledge Tower

135 Rutledge Avenue

Charleston, SC  29425

843-876-0444

Ages served: Children

Shriners Hospital for Children – Greenville

950 West Faris Road

Greenville, SC  29605

864-271-3444

Ages served: Children

TENNESSEE

Children’s Hospital at Erlanger
Walter E. Boehm Birth Defects Center
975 E. 3rd Street
Chattanooga, TN  37403
423-778-2222
Ages served: Children and adults

Le Bonheur Children’s Medical Center

848 Adams Avenue

Memphis, TN  38103

901-287-PEDS

1-866-870-5570

Ages served: Children

*Monroe Carell Jr. Children’s Hospital at Vanderbilt – Spina Bifida Program

2200 Children’s Way

Doctor’s Office Tower, 6th Floor

Nashville, TN 37232

Ages served: Children

TEXAS

* Dell Children’s Medical Center Spina Bifida Clinic

4900 Mueller Boulevard

Austin, TX  78723

512-324-0137

Ages served: Children

*Cook Children’s Medical Center

STRONG Clinic

750 8th Ave

Fort Worth, TX 76104

(682) 303 -0376

Ages Served: Children

*Texas Children’s Hospital Spina Bifida Clinic

Texas Medical Center

6701 Fannin Street

Wallace Tower, Floor 16, Suite 1610.01

Houston, TX  77030

832-822-4308

Ages served: Children

Methodist Children’s Hospital Pediatric Specialty Clinics

Methodist Plaza

4499 Medical Drive, Sublevel One

San Antonio, TX  78229

800-297-1021

210-575-7371

Ages served: Children

*University of Texas Spina Bifida Clinic

6410 Fannin Street
Suite 950
Houston, TX 77030
(832) 325-7234
Ages served: Children

Baylor College of Medicine Medical Center
McNair Campus
7200 Cambridge St.
8th Floor, Suite 8A
Houston, TX  77030
Ages served: adult patients transitioning from Texas Children’s Hospital Spina Bifida Clinic

*Texas Scottish Rite Hospital for Children

Spina Bifida Clinic

222 Welborn Street

Dallas, TX  75219-3993

214-559-7855

Ages served: Children

El Paso Children’s Hospital Multispecialty Clinic
Spina Bifida Clinic
5340 El Paso Drive, Suite M
El Paso, TX 79905
915-242-8402
Ages served: Children

Parkland Developmental and Cognitive Clinic
Ron J. Anderson, MD Clinic Building
5184 Tex Oak Ave., 5th Floor,
Dallas, TX 75235
214-266-9770
Ages served: Adults

UTAH

*Primary Children’s Medical Center / Spina Bifida Clinic

81 N. Mario Capecchi Drive

Salt Lake City, UT  84113

801-662-1675

Ages served: Children

UNIVERSITY OF UTAH HEALTH – ADULT SPINA BIFIDA CLINIC
175 North Medical Drive East
Salt Lake City, Utah 84132
801-585-6065
Ages served: Adults

States V-Z

VERMONT

University of Vermont Children’s Hospital / Spina Bifida Collaborative Care Program

111 Colchester Avenue

Main Campus, East Pavilion, Level 4

Burlington, VT  05401

802-847-8840

Ages served: Children

VIRGINIA

University of Virginia Health System

Child Development and Rehabilitation Center

1204 W. Main Street, Fourth Floor

Charlottesville, VA  22903

434-924-8184

Ages served: Children

Children’s Hospital of Richmond at VCU Children’s Pavilion / Spina Bifida Clinic

1000 East Broad Street

Richmond, VA  23219

1-800-762-6161

804-828-CHOR (2467)

Ages served: Children

CHILDREN’S HOSPITAL OF THE KING’S DAUGHTERS
5th Floor Urology Suite
601 Children’s Lane
Norfolk, VA 23507
757-668-6567
Ages served: Children

WASHINGTON

*Seattle Children’s Hospital and Regional Medical Center / Neurodevelopmental Clinic

4800 Sand Point Way NE

Seattle, WA  98105

206-987-2210

Ages served: Children

MULTICARE ADULT DEVELOPMENTAL CLINIC

1322 3rd Street NE

Puyallup, WA 98372

253-697-1435

Ages served: Adults

WEST VIRGINIA

WVU Medicine Pediatric Neurosurgery

1 Medical Center Drive, Floor 2

Morgantown, WV  26506

304-293-5041

Ages served: Children

WISCONSIN

Gundersen Health System

1900 South Avenue

LaCrosse, WI  54601

608-775-2276

Ages served: Children

*University of Wisconsin/American Family Children’s Hospital Pediatric Spina Bifida Clinic

1675 Highland Avenue

Madison, WI  53792

608-263-6420

Ages served: Children

Marshfield Medical Health System

1000 N Oak Avenue

Marshfield, WI  54449

715-387-5350

1-866-520-2510

Ages served: Children

*Children’s Hospital of Wisconsin Spina Bifida Program

8915 W. Connell Court

Milwaukee, WI  53226

414-266-4840

414-266-2690

Ages served: Children