Events

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Teal on the Hill

Virtual!

Teal on the Hill is an annual event that brings members of the Spina Bifida community together from across the U.S. to advocate for issues such as continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention (CDC); disability rights; and affordable and accessible health care, medical supplies, and technologies.
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March

02

12:00 pm Eastern Time

End time: March 04, 5:00 pm Eastern Time

New Voices for Spina Bifida with BILLY Footwear

In this session we will hear Billy’s story. At 18, he fell headfirst from a window to concrete breaking his neck and lower back. The fall caused a spinal cord injury and left him paralyzed from the chest down affecting all four of his limbs. His mind went to a negative place. But with the support from many, he chose to change his mindset. Instead of focusing on what he had lost, he was able to embrace what he still had, which was life. A life worth living and a new opportunity to add value and make each day count.
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March

13

7:00 pm Eastern Time

End time: 8:00 pm Eastern Time

Community Information Session – Medical Trauma and Adults with Spina Bifida

This session will explore the ways that medical trauma can affect your daily life and relationships, and offer suggestions to manage medical trauma based on lived experiences. The session will also explore the relationship between medical trauma, chronic pain, and depression and anxiety.
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March

25

7:00 pm Eastern Time

End time: 8:00 pm Eastern Time

Community Information Session – Navigating Employment and Benefits at Age 18

This session will discuss topics including how to search for adult physicians; what benefits are available after age 18 or after leaving the pediatric clinic; financial planning tips; using vocational rehabilitation and employment services; understanding home and community-based waivers; and more.
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April

03

7:00 pm Eastern Time

End time: April 03, 8:00 pm Eastern Time

New Voices for Spina Bifida: Personal Care Products and Waivers with Attindas Hygiene Partners

This presentation will cover how to navigate the waiver process when purchasing personal care products.
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April

24

7:00 pm Eastern Time

End time: April 24, 8:00 pm Eastern Time

Spina Bifida Clinical Care Meeting

Children's of Alabama

The Spina Bifida Clinical Care Meeting (SBCCM) is a unique forum where you can access all that's new, evolving, challenging, and successful in the care of individuals with Spina Bifida, and is an unparalleled opportunity to meet, network, and collaborate. Join us at Children's of Alabama in Birmingham, AL June 6-7, 2025.
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June

06

End date: June 07