FOR IMMEDIATE RELEASE
Contact:
Spina Bifida Association
Giana Mills
(800) 621-3141
[email protected]
Release Date: Jan 27, 2025
Spina Bifida Association Statement on Federal Cuts: Protecting the Spina Bifida Community
To Our Spina Bifida Community,
We know that recent federal budget cuts pose significant challenges for the disability community, including individuals with Spina Bifida. As the only national organization solely dedicated to advocating for people with Spina Bifida, we are actively engaged in the fight to protect critical programs and research funding that directly impact our community.
We have joined forces with the broader disability and nonprofit communities in advocating against these cuts. While we may not always have the capacity to report on every action we take, please know that we are working tirelessly behind the scenes to ensure your voices are heard. Our primary focus remains on preserving essential funding for the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC), safeguarding the Spina Bifida Registry and vital research efforts.
Collaboration is key in these challenging times, and we continue to work closely with advocacy partners to push back against harmful funding reductions. We may be a small organization, but we are loud and persistent when it comes to protecting the health and well-being of our community.
Your support and engagement are critical. Together, we will continue to fight for the resources and research that improve lives and advance our mission.
Thank you for standing with us.
Spina Bifida Association
SBA, established in 1973, is the nation’s only voluntary health organization dedicated to improving healthcare outcomes for the over 166,000 Americans living with Spina Bifida—one of the most common, permanently disabling birth defects compatible with life. SBA and its network of local chapters support the Spina Bifida community through research, advocacy, educational programming, and direct information and referral support.
For more information on SBA, call (800) 621-3141 or visit www.spinabifidaassociation.org