At the Spina Bifida Association (SBA), we deeply value and appreciate the groundbreaking research being conducted to improve the lives of individuals with Spina Bifida. Your dedication and innovative spirit are instrumental in advancing our understanding, treatment, and management of this complex condition. Every study, every discovery, and every published paper brings us one step closer to a future where individuals with Spina Bifida can lead healthier, more fulfilling lives.

Researchers who would like SBA to get the word out about their reseach projects should submit the items below to [email protected].

• Checklist for Researchers Partnering with the Spina Bifida Association.
• IRB approval.
• Informed-consent materials.
• Abstract with a detailed description of the study.
• Actual copy of the survey.
• Promotional materials to be used for recruitment.
• Agreement to share study outcomes with SBA.
• Explanation of study implications on the SB community and how it informs the Spina Bifida Community-Centered Research Agenda.
• Inclusion of the SB community during the development stage of proposal. If this is not possible, provide an explanation.

While your research is making a significant impact in the scientific community, we invite you to extend your influence even further by supporting SBA through a donation.  Your research fuels hope, and your donation empowers change. Thank you for your unwavering commitment to scientific excellence and your compassionate support of our mission.